World Hemophilia Day - 17 April.

World Hemophilia Day is always observed on April 17. Sometimes it is also called World Bleeding Disorders Awareness Day. The focus of the day is to identify and to reach out to new members of the bleeding disorders community.

Hemophilia is a bleeding problem. People with hemophilia do not bleed any faster than normal, but they can bleed longer than usual. Their blood does not have enough clotting factor. Clotting factor is a protein in blood that controls bleeding. The condition affects about 1 in 10,000 people.

Since hemophilia is a genetic condition, it is usually inherited, meaning that it is passed on through a parent’s genes. Genes carry messages about the way the body’s cells will develop as a baby grows into an adult. They determine a person’s hair and eye color, for example.

World Hemophilia Day was started in 1989 by the World Federation of Hemophilia (WFH) which chose to bring the community together on April 17 in honor of WFH founder Frank Schnabel’s birthday.

April 17, 2023 is World Hemophilia Day. 

The theme of the event this year is “Access for All: Prevention of bleeds as the global standard of care”. Building on last year’s theme, the call to action for the community in 2023 is to come together and advocate with local policy makers and governments for improved access to treatment and care with an emphasis on better control and prevention of bleeds for all people with bleeding disorders (PWBDs). This means the implementation of home-based treatment as well as prophylactic treatment to help those individuals have a better quality of life.

Source: https://wfh.org


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