Hemophilia is a bleeding problem. People with hemophilia do not bleed any faster than normal, but they can bleed longer than usual. Their blood does not have enough clotting factor. Clotting factor is a protein in blood that controls bleeding. The condition affects about 1 in 10,000 people.
World Hemophilia Day was started in 1989 by the World Federation of Hemophilia (WFH) which chose to bring the community together on April 17 in honor of WFH founder Frank Schnabel’s birthday.
World Hemophilia Day 2021 Theme: Adapting to Change, sustaining care in a new world.
World Federation of Hemophilia
The World Federation of Hemophilia (WFH) is an international non-profit organization dedicated to improve the lives of people with hemophilia (also spelled haemophilia) and other genetic bleeding disorders. It educates hemophiliacs and lobbies for improved medical treatment. 75 percent of people in the world with bleeding disorders do not receive adequate treatment.
The WFH was established by Frank Schnabel in 1963 and has its headquarters in Montreal, Canada. It has member organizations in 113 countries and official recognition from the World Health Organization.
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